Tuesday, May 10, 2011

Feeling Better...

Nathan seems to finally be feeling better from this awful virus he's had since Friday! We made it through the day yesterday without a fever and so far so good this morning! He isn't interested in drinking his EleCare still, but maybe he just needs another day or two to get rolling with that again.

For now, we just offer him his cup when it's time and if he doesn't take it we put it through his NG tube with a syringe. It takes about 10-15 minutes, most of the time he is good and will sit reasonably still in his high chair watching TV while we do it. But since we are needing to do it a 4-5 times a day here lately he is beginning to get annoyed with sitting still for so long. This morning he squirmed and fussed the whole time. I hate to see him like that since he's such a happy boy all the time, but it's necessary so that he gets the nutrients his body needs. It's also starting to get exhausting on my part... we can't leave the house until he's been fed through his tube, and we have to hurry home in time for the next feeding. I've just left a message with Dr. Williams asking him if we need to start doing a continuous feed all day long instead of this. We don't want that as Nathan would be required to wear a backpack holding his EleCare and feeding pump all day, which I'm sure wouldn't be much fun for him. But, it may be easier in the long run at the same time. We'll just try to be patient and wait and see what happens.


  1. Do you have any of those lift-a-flap books? These kept my boys occupied in the car for hours on long trips. So very, many flaps to lift! You might start a stash of special books and toys just for NG tube times.


    I found these at Walmart and Target.

  2. Thanks for the great idea! We will have to try that!!! :o)