Friday, May 6, 2011

Here We Go Again...

Just got off the phone with the Gi doctor... Nathan has been decreasing his oral intake of EleCare again and is getting another NG tube placed today. I know it's for the best but this is just so hard and so frustrating!!! I don't want Nathan to grow up any faster than he already is, but I long for the day when he can tell us what is hurting him and exactly how he is feeling and why he doesn't want to drink his EleCare. All of this guessing and not knowing for sure is enough to make me crazy!


  1. Its for the best for now. Love and prayers

  2. It's going to get so much better so very soon. Just keep breathing and keep praying. Big Hugs! This puzzle really helped us talk to L about his condition and show us where it hurt.

  3. I, too, wish my little boy (who is almost two) could tell us when he was hurting and why he doesn't want to drink his EleCare. It's so hard to think that he's probably hurting a lot of the time but I can't do anything about it because I just don't know!