Mark just called me at work to tell me that Nathan had pulled out his NG tube sometime during the night... the brand new NG tube he just had placed hardly 12 hours ago!
Each time we have an issue with the NG tube leaking, coming disconnected, or being pulled out I am closer and closer to wanting him to get a G-tube! We were already planning on discussing the possibliity of the G-tube with Dr. Williams on Tuesday next week. Now the conversation is going to be talking about the certainty of getting the G-tube and when it can be done. Mark and I are hoping the same time of his next scope in early June a couple of weeks from now.
When the home health nurse came out and weighed Nathan yesterday, he still weighed the exact same as he did 8 days ago... that means that those nights we had problems with his NG tube connection coming loose and his formula going all over his bed and what had made it in to his tummy pouring out of the disconnected tube made a big difference. It made the difference of him not gaining a bit of weight over the course of the week. Every tiny drop of that EleCare is so important to Nathan's nutrition right now and we feel that the G-tube will be a better way to get it in him.
We would be dumb to think that the G-tube is without complications of its own. We know things will never be as easy as feeding our child "normally"
would be. But other parents of kids who ended up with G-tubes all say that their live's and their child's improved dramatically for the better once they took the leap.
Mark and I are ready for the next step in this journey with our son.